Give three compelling examples of how cultural issues affect your project.
I am a part of the Diagnosing Autism in Africa team. There are currently many cultural issues that affect the ongoing situation in Sierra Leone. These issues not only create misperceptions within the country but also impact the likelihood of our project to succeed. The first cultural issue affecting our project is the misperception people have about individuals with autism. Many people do not know what autism is, they instead believe that individuals who have what we know and call autism, are demon-possessed or cursed. Instead of seeking medical and professional treatment, they resort to spiritual healers. The second cultural problem that affects our project is the lack of understanding within the culture of mental disabilities. Not only do people not know about autism, but their culture generally is not very responsive to mental disabilities. A lot of different mental disabilities with varying needs are grouped together, which makes it harder for families to seek care for their loved ones. Finally, the last cultural issue that affects the progress of our project is the idea of “returning a child to God”. There is a perception that if a child is born with a disability they are “imperfect” and must be “returned to where they came from, heaven”. Sadly, this results in many deaths of children with disabilities. Instead of addressing the issue some families opt to kill or neglect their children, a very serious and upsetting cultural issue.
Have you experienced or observed any of these social situations at home? Describe at least three such situations.
Although with not exactly the same context, I have also experienced misperceptions about disabilities here in the United States. I have had conversations with parents who have told me they have opted out of vaccinating their children due to their belief that vaccinations can lead to autism. This belief has been disproven by countless scientists, yet it seems that this misperception is still held by many people. This continues to perpetuate stigmas about autism. Furthermore, I have observed examples of families who don’t pursue appropriate care for their children due to a lack of resources. Autism is known as a spectrum, and many families don’t recognize that their child has autism as they have misperceptions of what autism is. Furthermore, some families don’t have the resources to properly care for them. Although here in the U.S. there isn’t a practice of “returning children to God” there may often be misperceptions from families about whether or not they are to blame for their child being diagnosed with autism. Although there seems to be a bigger understanding of autism in the U.S. due to more education and advocacy groups bringing awareness, there are still many misperceptions that occur. This shows us that the issue is not only in low and middle-income countries but also in western countries. Although our project is based in Sierra Leone this shows us that there is a lot of work to do everywhere, and through the knowledge that we gain in this project, we can continue to help spread awareness in our hometowns and to the Lehigh community.
Give three examples of cultural practices that can be leveraged to address community / market problems.
Cultural practices within Sierra Leone that can be leveraged to address the community include:
- Family Values: Sierra Leoneans value family and kinship. These values make them a society that values the community rather than the success of an individual. These values can be used to aid our mission and project as we aim to build a system that will not only help individuals with autism but the community as a whole. This can also help spread our mission throughout the community in which we will be based.
- Polite Culture: The people of Sierra Leone also have a very polite and formal culture. When engaging in meetings or other events, citizens will engage and interact with others in a very formal matter. This will be important to us when working within the field. If we engage in a very formal matter too, our project will be taken more seriously and with more importance.
- Management of Other Crisis: In the past, the country has been shaken by other crises. For example the Ebola outbreak in Western Africa. The country employed a system in which they trained workers who then helped to educate locals. This spread the level of education from professionals to everyday citizens. This was crucial in taking steps to raise awareness about the virus. This can be used by our team when working in the country. If we can help train workers who will then employ what they have used within the community, we can begin to build a self-sustaining system.