Ethical or not?
If we are more transparent and give them more of an education (e.g. pathogens in water, boil water) on what we are doing, then yes.
Facts
- I am an academic researcher expecting several publications out of the research study in Lesotho
- There are clear signs that Lesotho water has disease causing pathogens
- Their methods for storing water are different and uncommon compared to previous knowledge of the research team
- Driving the community members up the lake in exchange for information is considered good enough payment – do not expect actual pay
- We need to rely heavily on indigenous knowledge to move towards a clear problem statement or solution
- The research team and I are experts in pathogen/ disease research (health medicine and society)
- Research funded by an outside source, university/lab/government that expects a clear outcome
- We are hoping that the chemical additives will make the water safer to drink, but there will be costs involved that we are unsure they can afford
- assume all IRB’s have been obtained
- Assume we would get assistance from the local community
- There may be implications of not being able to complete the study (funding, brand, relationships may be affected) – to avoid this, ahead of time, do research on stakeholders
Stakeholders and Motivations
- Local water company
- Get out product/earn revenue
- Help those patients involved
- University/lab/government (Funding agency)
- Treat spread of disease
- Reputation of gaining academic knowledge on pathogen
- Funding agency will have their name attached to the possible solution
- More advertising – want to be a world leader in the field – want to build up their brand
- More partners
- Research team
- Help patients involved
- Further their career and potentially making money
- Earn more money to continue doing research and get continuous funding
- Local people
- Create healthier living environment
- Have safer water to drink
- Lessen the risk of contracting a disease-causing pathogen
- Excitement to learn and socialize – but their vulnerability may result in wanting you to hear what you want to hear – they do not want to come off as ignorant – they may reinforce your ideas because they think you’re smart and want to agree. On the other hand, some may be weary to trust an outsider so make sure you talk to the right people
- Negotiating entry
- Cleaner water may lead to more tourism/more business connections
- Tertiary Stakeholder Hospital/ health care workers (third party to the solution in its direct implications)
- Treat people with the illness
- Make sure hospital isn’t always at capacity – prevent future cases
- can devote their resources to something else
- Academic Journal
- Getting new and credible information that will better their reputation and add to their plethora of knowledge
- Yourself (Researcher)
- Help local communities involved
- (Hopefully) Actual interest/passion for social impact
- Understand the lifecycle and characteristics of the pathogen and the chemical
- Boost credentials
- Maintain your job and further career
Ethical Issues
- Should we focus on rare diseases that only affect a few people?
- Negotiating entry: who are we going to incentivize
- community health workers?
Alternative Solutions
- Send prepaid sampling supplies and provide incentives to the people to gather water samples/take surveys seeing where people get water from
- Pros:
- Local water company: get out product and earn revenue
- University/lab/government (funding agency): save travelling expenses, treat spread of disease, gain reputation and more partners
- Research team: save the time to travel, help patients involved, futher their career, make potential profit
- Local people: drink safer water, gain profit, learn more knowledge about pathogens, gain potential tourism
- Hospital/health care workers: treat patients more efficiently, prevent future cases
- Academic journal: gain reputation, spread the new information on pathogens
- Yourself (Researcher): help local community involved, understand the lifecycle and characteristics of the pathogen, boost credentials, maintain your job and further career
- Cons:
- Local water company: short of clean water resource
- University/lab/government (funding agency): samples might be taken incorrectly, lose reputation, extra money on hiring volunteers
- Research team: extra time on checking the water source
- Local people: take wrong water sample, patients would need longer time to recover
- Hospital/health care workers: more people might get the disease
- Academic journal: extra time on checking the accuracy of research, might lose reputation due to wrong sample and wrong result
- Yourself (Researcher): extra time to filter the correct sample, might be unable to maintain your job if there is one mistake
- Principle: Consequence based thinking
- Pros:
- To find water sources on our own without any local assistance
- Pros:
- Local water company: save time on supporting the research, get revenue and probably safer water source
- University/lab/government (funding agency): save money spent on local assistance, gain reputation and more potential partners, treat spread of disease
- Research team: removes ethical dilemma regarding the community, help patients, further their career and potentially making money
- Local people: have safer water and less risk on getting the disease, learn new knowledge, gain potential tourism
- Hospital/health care workers: treat patients more efficiently, prevent future cases
- Academic journal: gain reputation, spread the new information on pathogens
- Yourself (Researcher): save funding, help local community involved, understand the lifecycle and characteristics of the pathogen, boost credentials, maintain your job and further career
- Cons:
- Local water company: lack of clean water source
- University/lab/government (funding agency): extra cost on longer time of research
- Research team: extra time to check the sample and to find the water with pathogens
- Local people: no opportunity to learn, longer time to receive safer water, higher risk of getting this illness
- Hospital/health care workers: higher risk of disease spreading, need to treat more patients
- Academic journal: extra time on checking the accuracy of research, might lose reputation due to wrong sample and wrong result
- Yourself (Researcher): could be gathering water where they do not drink from and it could take much longer than if you asked the community
- Principle: Duty based thinking
- Pros:
- Blueprint: How to move forward with what we found; how they can progress with our research findings to stay healthy and lessen the risk of getting the pathogen – and then ultimately make publication available to people here
- Pros:
- Local water company: the water source will not be affected
- University/lab/government (funding agency): save travelling expenses, treat spread of disease, gain reputation and more partners
- Research team: save the time to travel, help patients involved, futher their career, make potential profit
- Local people: their normal life will not be interrupted
- Hospital/health care workers: expect a decline of patient number after the publication, get the patients a better treatment
- Academic journal: gain reputation, spread the new information on pathogens
- Yourself (Researcher): save the time to travel, save travelling expenses, understand the lifecycle and characteristics of the pathogen, boost credentials, maintain your job and further career
- Cons:
- Local water company: require longer time to make the water safer to drink, will not make profit
- University/lab/government (funding agency): extra cost on longer time of research
- Research team: cost more, extra time on checking the sample and to find the water with pathogens
- Local people: no opportunity to learn, longer time to receive safer water, higher risk of getting this illness
- Hospital/health care workers: higher risk of disease spreading, need to treat more patients
- Academic journal: more time to publish
- Yourself (Researcher): extra time to do the research, might be unable to maintain your job if there is one mistake
- Principle: Consequence based thinking
- Pros:
When keeping a solution in mind you want to keep it practical and efficient. The study needs to be done correctly in order for the trip to be successful.
Best course of action
Most realistic would be making progress with the current findings in the lab on how to reduce the risk of getting the pathogen, and meanwhile sending prepaid sampling supplies, enough education, transparent information, and incentives to local people for collecting water samples at the correct location.
Negative implication: Local people might still get wrong samples, so it requires longer time to get a result. Thus, extra cost will be needed from the funding agencies, while the disease might spread at the same time.